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Board of Directors

The FPWR Canada board is comprised of parents of people with PWS as well as comunity professionals. The FPWR Canada board has a ‘fundraising’ board policy, which means that each board members commits to a target of raising $10,000. The current list of FPWR Canada board members are:

President & Chairman | Vice President | Treasurer | Board Members


Keegan JohnsonKeegan Johnson

Keegan Johnson is the President and Co-Founder of Ethoca (www.ethoca.com), a privately held company which acts as the centre of a community of online companies working together to share order experiences and stop fraudsters dead in their tracks without blocking good orders. Prior to founding Ethoca, Keegan spent more than 8 years in the Internet integration and ASP industry, successfully leading CryptoLogic Inc.’s technical and business integration with a number of blue-chip companies. As Project Manager, Keegan was responsible for rolling out and providing direction for new multi-million dollar Marketing and Customer Service product lines.

Keegan is also the founding President and Chairman of the Foundation for Prader-Willi Research Canada (www.fpwr.ca) and the Vice President of the FPWR USA. He holds an Honours Bachelor of Science degree in Computer Science with a minor in Physics from McMaster University. At McMaster, Keegan was a captain and an OUAA All-star with the Marauders Men’s basketball team. Keegan currently lives in Mississauga, with his wife Tanya. He is a proud father to Denzel and Dante (pws).


Jack JonesJack Jones

Jack Jones is the founder and CEO of Collabinate, a technology business created with the belief that when people work together, they accomplish great things. Collabinate helps software companies add collaboration and social features to their products. Prior to founding Collabinate, Jack spent 15 years in leadership roles in various technology companies ranging from three person startups to household names like IBM and Motorola.

Jack attended the US Military Academy at West Point, and studied Computer Science at Northeastern University. He currently lives in Brampton with his wife Belinda, his son Jordan, and his daughters Izabella and Brooke, who has PWS. The family has hosted several One SMALL Step walks for FPWR.


Jeff BaldwinJeff Baldwin CPA, CA, GBA, BBA (hons.)

Jeff joined the BPA Financial Group in 1999 as Chief Financial Officer and in 2011 was named President of Benefit Plan Administrators Limited. Jeff has over 16 years experience working with multi-employer Trust Funds from an administrative and financial perspective. Jeff oversees all BPA operational departments (Administration, Pension, Claims) as well as Finance and Information Technology at BPA’s six (6) offices. In 2002, Jeff earned his Group Benefits Associate (GBA) designation from the International Foundation of Employee Benefit Plans through Dalhousie University in Nova Scotia. Jeff is a regular speaker at the International Foundation of Employee Benefit Plans, including teaching both the Foundation of Trust Management Standards (“FTMS”) course and the Advanced Trust Management Standards (“ATMS”) course offered by the I.F.E.B.P. to Boards of Trustees. Jeff earned the Chartered Accountant (CA) designation in 1993 and the Chartered Professional Accountant (“CPA”) designation in 2012. Prior to joining BPA Jeff worked for two prominent accounting firms in Ontario. Jeff has his Bachelor of Business Administration honours degree from Brock University in Ontario.


Mark Giroux
Mark Giroux is Marketing Manager with GlaxoSmithKline (GSK) Consumer Health. In his current role he is responsible for the planning, development, and execution of professional marketing strategies across a number of OTC brands. In addition to this, he works on various medical business development projects.

Prior to working in the Consumer division, Mark worked in pharmaceutical sales with GSK for ten years. His last five years were spent in specialty hospital sales working closely with Respirologists and Internal Medicine physicians on promotional, scientific, and other joint partnership opportunities.

In 2010, Mark graduated with his MBA from the University of Leicester and prior to that received his degree in Communications from Wilfrid Laurier University. He also attended Fanshawe College and graduated as a Paramedic.

Mark and his wife Shannon currently live in Burlington and have two sons. Aside from the responsibilities of parenthood, together they run an online Proofreading and Translation business and are active members on the planning committee for the annual Guelph Gala, which is another fundraising event in support of PWS research.

Peter Evans
A Senior executive with over 35 years of international managerial experience in the financial industry.

SVP with the Canadian branch of a large American bank and its legacy entities. A member of the global senior management Treasury team, responsible for all treasury functions of asset and liability management, capital and liquidity requirements, and regulatory compliance. Responsible for establishing and developing brokerage offices in Europe, Southeast Asia, the Middle East and New York for a major London brokerage house.

Actively involved in the Greater Toronto community, serving as a member of the Management Board of the Toronto Zoo (Vice-Chair) and the Toronto Zoo Foundation (Chair). Interim CEO of the Toronto Zoo (2009-2010)

Also provided leadership in the area of sustainable development though a regional projects recognized by the United Nation Centres of Expertise program.

Peter is married with two married sons and four grandchildren and currently serves on corporate and charitable boards

MMark BagattoMark Bagatto

Mark Bagatto is the Senior National Account Manager for Sofina Foods, where he has had a variety of sales and account management positions since joining Sofina in 2013. Mark has been a sales executive since 1996 with expertise in retail, marketing and package goods. Mark is also an honours graduate of the Sheridan College Business program. Mark’s wife Rosa is also involved in FPWR as part of the One Small Step Committee and live in Mississauga with their daughter Madeline and son Michael.

Tad GacichTad Gacich

Tad Gacich is the President and Owner of Gacich Financial Inc., which he considers a one stop shop for financial planning. He is an entrepreneur at heart and helps the “little guy” manage risk, save taxes and accumulate wealth for a secure future. Born and raised in Toronto, Tad attended McMaster University and obtained his B.A/Bsc. While at McMaster Tad started a window washing business and sold it when he graduated in 1986 for $5,000. Tad went on to the University of Ottawa where he obtained his law degree. In 1991, Tad joined London Life which launched his career as a financial advisor. Tad has obtained his designations of Chartered Life Underwriter, Chartered Financial Consultant and Certified Financial Planner. Today, he works in Aurora and is active with The Aurora Optimist Club and Chamber of Commerce. He lives in Newmarket with his wife, Lynn and their children, Nicole and Connor.

Holly SineHolly Sine

Holly Sine is the President of the Pagnan Group Inc., an Animal Health and Human Health Consulting business. She specializes in generic pharmaceutical commercial operations for both the veterinary and human industry. Holly possesses a Pharmaceutical Regulatory post university diploma and has over 7 years experience previously working with Teva Canada Ltd. registering oral and injectable generic pharmaceutical products with Health Canada.

Holly graduated with a double major in Human Biology and Economics from the University of Toronto. While at U of T, Holly was a varsity athlete for the women’s basketball team. Holly received an OUA All-star designation, OUA championship title and competed in the CIS championship tournament in her senior year.

In January 2014 Holly and her husband Michael welcomed their twins Jack and Kyrie to join their family with sons Grant (15) and Quinn (13). Jack was diagnosed with PWS at 2 months of age. The Sine family resides in Burlington Ontario. The Sine’s love to travel, spend time with family and visit their cottage during the summer.

brookeBrooke Gibson

Brooke Gibson is a stay-at-home mother of 3 young children. A graduate of Social Science with a major in Sociology from the University of Calgary, prior to becoming a mom, Brooke was a Human Resource consultant for a small Consulting firm in Calgary, Alberta.

She is currently the president of the Prader-Willi Syndrome Association of Alberta (PWSAA), and has hosted several fundraising events for the FPWR including 2 One Small Step walks, a pub night, and a fun money casino. She was the vice-chair for the 2015 National FPWR conference hosted in Calgary.
In her current pursuits Brooke is at home with a 6-year old daughter, Kayla, a 5 year-old son, Daniel, and a 2 year-old son, Christopher. Daniel was diagnosed with PWS at 10 days old. Brooke also works part-time doing bookkeeping from her home office.

The Gibson family lives in Chestermere, Alberta and loves spending their time outside in and around the rocky mountains. They also like to travel throughout the year and spend much time during the summer months at her parents cabin in Wasa Lake, BC.