The Foundation for Prader-Willi Research (FPWR) was established in 2003 by parents of children with Prader-Willi syndrome (PWS). Today, FPWR is composed of parents, family members, researchers, and others who are interested in addressing the many issues related to PWS, including childhood obesity and autism spectrum disorders.
For more information please visit www.fpwr.org.
IPWSO’s mission is to raise the quality of life for all people with Prader-Willi Syndrome and their families. Financed by subscriptions from member associations, by donations, and grants, IPWSO is a non-profit organization, run by volunteers, with one part time paid Director of Program Development and one part-time Business and Technology Advisor.
Go to the IPWSO website: www.ipwso.org