News & Upcoming Events
Everybody is Different – How to Tell Your Child About Prader Willi Syndrome
How do I tell my child they have Prader-Willi Syndrome? When do I tell my child they have Prader-Willi Syndrome? What do I say? Once you child is a few years old these can be the trickiest questions on a parent’s mind. If I tell them too early, will they let PWS define them? If [...]
Is Microsoft’s Kinect the Secret Weapon in the War on Obesity?
We all know the rates of obesity are rising. The rates are alarming no matter where you look: Obesity in children rises from 6.5% to 20% in last 30 years Nine US states have obesity rates over 30% An unbelievable, 64% of adults over 20 are considered overweight or obese The situation looks pretty grim. So [...]
Top 5 Mistakes Parents of Children with Prader-Willi Syndrome Make
Although we try our best, we pretty quickly find out that we are not perfect parents. On some days after we have set a clear daily plan, avoided over stimulation and used positive re-enforcement … and your child still has a meltdown, we feel like we would settle for just being an average parent. Well [...]
Happy Denzel Day
In case you didn’t know we recently celebrated Denzel Day (pictured on the left). Denzel Day is not his birthday, but simply a day to celebrate Denzel. Dante (our son with PWS), gets a lot of attention at our Scotiabank One SMALL Step Walkathon (http://onesmallstep.fpwr.org). As parents of a special needs child we also [...]
Live in Montreal? Don’t miss this garage sale for PWS!
June 5th and 12th, you can support PWS research, check out the flyer for more details: Montreal Garage Sale for PWS Flyer
Dr. Haqq Needs the PWS Community!
Dr. Haqq, one of Canadian’s finest Endocrinologists and PWS researchers needs our help. Become part of the solution and take part in one or all of Dr. Haqq’s studies NOW. FPWR Canada funded Dr. Haqq in 2009 and she is already seeing results, she says herself, “We are particularly excited by our preliminary novel findings on [...]
Best Mother’s Day Video EVER!
Thank you to Rhea Utley from Quebec who created this amazing video to acknowledge and thank all mothers with special needs children. It highlights mothers and their children and adults with Prader-Willi Syndrome from all over the world and shows their tremendous effort and determination in raising a child with PWS and helping them to [...]
The Power of Prader Willi Syndrome Moms
Did you know that mothers of children with Prader-Willi Syndrome have up to twice as much stress when compared with parents of other developmentally disabled children? In addition, parents with disabled children already report a 10% higher number of stressors then the average parent. Not to mention a recent American Psychological Association poll that found that one-third [...]
In memory of Hans Reiche and in support of Prader-Willi Syndrome…
In Memory of Hans Reiche – Feb 23, 1919 –Feb 21, 2011. Hans Reiche of Calgary, beloved husband, father, grandfather and great-grandfather, passed away on Monday, February 21, 2011 at the age of 91 years. Greta (7 years), one of his great-grandchildren, has Prader-Willi Syndrome. She and “Opi”, as he was called, had a special [...]
Top 10 Myths About Prader Willi Syndrome
Top 10 Myths about Prader Willi Syndrome Prader Willi Syndrome (PWS) can be difficult to understand. It is also easy to take general information and assume that it applies to all people with PWS. From personal experience I can tell you that people with Prader-Willi Syndrome have as many beautiful variations as everyone else. I [...]