News & Upcoming Events
Live feed from One SMALL Step Walkathon starting at 11:45 EST Aug 15
You can now watch live our One SMALL Step Walkathon prizes and International iPad draw starting at 11:45 EST, August 15th.
To tune in type the following link into your web browser http://www.ustream.tv/channel/fpwrcanadatest
… subject to us getting good internet reception from the park
Matt and Chloe Hawkins Take Prader Willi Syndrome to Today’s Parent
Matt Hawkins is known for his film making, but this time it was his writing that stole the show. Matt wrote in to Today’s Parent and won a contest to have a feature article written about Matt and his daughter Chloe and included in Today’s Parent Magazine.
“Suddenly we were part of a community of parents [...]
Currie Family and Dr. Haqq on CTV talking about Prader-Willi Syndrome – Calgary, Alberta
Aidan and Callum are three-year-old twins. Callum has Prader-Willi Syndrome and the Currie family are committed to raising funds for research. The Currie family, along with other families with Prader-Willi Syndrome in Alberta are hosting their first One SMALL Step Walkathon on Sunday, August 15, 2010 at Edworthy Park. Registration begins at 10:30am. They have [...]
Prader-Willi Syndrome does NOT stop 8 year old from running 5km!
In Memory of Gladys Thomas
Gladys Irene Thomas was a proud great-grandmother to Greta Thomas-Sprake. In her memory the Thomas family will be accepting donations in Greta’s honour to raise money for Prader-Willi Syndrome research. To make a donation in memory of Gladys Irene Thomas, click here.
$58,000 for Prader Willi Sydnrome in Vaughan, Ontario!
FPWR Canada does it again. On Friday, May 14, we welcomed over 500 people to the Terrace Banquet Centre for our 4th annual Gala. It was an incredible night with Prader-Willi Syndrome families from across Canada and friends and families coming together to raise money to eliminate the challenges of Prader-Willi Syndrome. The night featured [...]
Prader Willi Syndrome, Extreme Makeover, The Starkweathers and Making Miracles Happen
Tonight everything changed for the Prader-Willi Syndrome community. With only 1 in 15,000 people affected by Prader-Willi Syndrome the community is small and often very spread out. On top of that Prader Willi Syndrome is so complex it has been difficult for researchers to make any significant progress. Finally, with our children getting older, [...]
5 Weeks, 5 Months and over $5000 for Prader-Willi Syndrome in Quebec, Canada
At 5 months old Rachel Howard was diagnosed with Prader-Willi Syndrome. 5 weeks later her parents Stacey and Eric Howard had raised over $5,000 for research into Prader-Willi Syndrome. Watch out world here comes Rachel.
Dealing with a new diagnosis can be overwhelming and it takes some time for families to adjust. As far as [...]
FPWR Canada Announces National Conference on May 15/16 for Prader-Willi Syndrome in Toronto, Ontario
“Your conference may have saved lives today,” – Karen Balko
You will not want to miss these 2 days of learning and sharing of Prader-Willi Syndrome best practices. For only $75 you can attend our 2 day National Conference on May 15th and 16th. You will hear from Prader-Willi Syndrome researchers including Dr. Haqq, Dr. Eric [...]
FPWR Canada annouces Gala on May 14 for Prader-Willi Syndrome in Vaughan, Ontario
Tickets are selling fast! Buy your tickets on-line http://www.fpwr.ca/news-events/events/one-small-step-gala/ (or call Michelle Cordeiro, 1-866-99-FPWRC x252) today! FPWR Canada is hosting our fourth annual One Small Step Gala on Friday, May 14 at Terrace Banquet Centre in Vaughan, Ontario. Enjoy a delicious meal, open delux, live DJ and silent/live auction for only $110. Buy a ticket for [...]