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FPWR News

A Tribute to Jacob Zavitz

Lessons For Living A Meaningful Life A Tribute To Jacob Zavitz We go through life trying to live and learn and do the best we can to make a meaningful contribution to society. And if you’re lucky, you meet amazing people along the way who inspire you and make you a better person. Jacob Zavitz […]

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In memory of Victoria Sprake

Victoria Sprake passed away peacefully at the Sarcee Hospice in Calgary on June 7, 2018. Born in Edmonton on August 13, 1947 to Garfield and Elsie Breyer, Vicki (as she preferred to be called) grew up with her older sisters, Darlene and Eva, in Fort Saskatchewan. She met her future husband, Ken, in 1965. They […]

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Get Involved – Clinical Trials and Studies Open to Canadian Families

Clinical trials and studies open to Canadian families For information about the importance of participation in clinical trials, visit https://research.fpwr.org/blog/pws-clinical-trials-2017-update-video   For up-to-date information on clinical trials and studies world-wide, visit https://www.fpwr.org/category/clinical-trials   Clinical Trials: participants are enrolled at a specific site. Clinic visits are required. Participants will be given the treatment or a placebo. […]

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Speech by Tanya Johnson, updates on research

Tanya Johnson (mother and FPWR Canada co-founder) gets emotional when speaking at our 10th Annual Golf Tournament about her son Dante, the challenges of PWS and exciting news in research.

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FPWR Canada 2018 Spring Newsletter

Clinical trial in Canada GLWL Research is now recruiting patients for its Phase 2 study to evaluate the efficacy, safety and pharmacokinetics of GLWL-01 in the treatment of patients with Prader-Willi syndrome. The study will compare the effects of GLWL-01 on hyperphagia as compared to a placebo. You can learn more about GLWL-01 click on […]

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FPWR Canada 2017 Year-End Review

FPWR Canada 2017 Year-End Review

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8th Annual National Conference Information

8th Annual National Conference Information

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A new clinical trial has started in PWS

A new clinical trial has started in PWS

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In memory of Kenneth John Thomas

Thomas, Kenneth John March 28, 1942 – December 22, 2017 Born in Innisfail and raised in Sundre, Alberta, Ken moved to Vienna, Austria as a young man to expand his education and experience in music and arts. While living there, he eagerly pursued his love of travel and toured throughout Europe and parts of the […]

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2017 Fall Newsletter

FPWR Canada Announces New President! Toronto, ON (July, 2017) – The Foundation for Prader-Willi Research Canada (FPWR Canada) a volunteer-based registered charity whose Mission is to eliminate the challenges of Prader-Willi Syndrome (PWS) through research, announced the appointment of Jack Jones as the new President of their Board of Directors. “Becoming President of the Foundation […]

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