News & Upcoming Events

2016 Fall Newsletter

2016 IPWSO Conference- A look back! It only seems like yesterday Tanya Johnson, 2016 IPWSO Conference Chair and Host began the 12 month countdown to the 2016 IPWSO Conference. FPWR Canada was very proud to host the 9th International Prader-Willi Syndrome Organisation Conference in the beautiful City of Toronto, Ontario from July 20 – 24, […]

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Girl’s Rare Condition Makes Her Constantly Hungry CALGARY, Alberta (September 6, 2016)

CALGARY, Alberta (September 6, 2016) – Imagine locking your fridge, freezer, pantry – even your garbage – to ensure your child doesn’t eat until her stomach bursts. That’s the reality for a Calgary mother whose 13-year-old daughter, Greta, suffers from a rare genetic condition called Prader Willi Syndrome (PWS). The disease affects one in 15,000 […]

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Summer to Remember Newsletter

Registration is OPEN until July 12, 2016 at midnight. Please go to www.fpwr.ca or http://www.fpwr.ca/news-events/events/ipwso-conference/ to register today! The Parent Conference registration fee as of May 16, 2016 is $325 CAD and includes: Breakfast, breaks (morning and afternoon) and lunch daily. For example, if you are a parent registering for the Conference July 23 & […]

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FPWR Canada receives $1M Commitment to Support Prader-Willi Research

FPWR Canada receives $1M Commitment to Support Prader-Willi Research May 27, 2016 – Toronto, Ontario:  FPWR Canada, a registered charity dedicated to supporting research to advance the understanding and treatment of Prader-Willi syndrome, announced it is the grateful recipient of a $1M commitment over the next 10 years to PWS Research.  This is the largest […]

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Donate A Car Canada Accepts Vehicle Donations for FPWR Canada

You can turn your vehicle donation into generous dollars to support Foundation for Prader-Willi Research Canada! Working on our behalf, Donate a Car Canada will accept your vehicle for donation — running, or not! Old or new! There is no cost to you, and the process is incredibly easy! Donate a Car Canada will facilitate […]

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“Springing” forward newsletter

Approved Research funded by FPWR Canada! LOSS OF MAGEL2 AND HYPOTONIA IN PRADER-WILLI SYNDROME ($116,791.61 CAD). Rachel Wevrick, PhD, University of Alberta. Dr. Wevrick’s group has found that mice missing the PWS-region gene Magel2 have reduced strength, activity levels and endurance. In this study they will examine interventions including diet, supplements and drugs, to improve […]

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2015 Year-End Review

2015 FPWR Canada Year-End Review

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September 2015 Newsletter – Fall is here at FPWR Canada

Meagan Michie, Canadian Athlete Special Olympics and PWS Champion! As told to Carole Elkhal, FPWR Canada Community Director Meagan Michie is not only an amazing ParaOlympic and Special Olympics Canadian Athlete who lives in Ottawa, she just happens to have Prader-Willi Syndrome! She has been swimming competitively for a number of years winning medals in […]

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Parents Strive to Stop Endless Hunger for Children with Rare Disorder

FOR IMMEDIATE RELEASE   Parents Strive to Stop Endless Hunger for Children with Rare Disorder   CALGARY, Alberta (September 2, 2015) – A small and dedicated group of local parents are leading the charge to fund research into a rare genetic disorder called Prader Willi Syndrome. On Sunday, September 13, they’re hosting Calgary’s sixth annual […]

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July 2015 Newsletter – Springing Forward with FPWR Canada

Hats off to Ryan and Sarah Kelly, parents to Clare and Neve, as they held their 6th Annual Live Life FULL Gala, at Creelman Hall, University of Guelph on June 5, 2015. When the Kelly family decided to host their first gala their hopes and goals were to celebrate their community, to promote awareness for […]

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