Event Details

Place Sheraton Gateway Hotel at Toronto Pearson Airport (View Larger Map)

Address Toronto Pearson International Airport, Terminal 3, Toronto AMF, 3000 Toronto Pearson International Airport, Toronto, ON L5P 1C4
Date Saturday, May 13, 2017
Time Registration Open: 8:15 am – 9:00 am
Conference Begins: 9:00 am
Registration Fee $50 per person

REGISTER ONLINE

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Please click here to register by mail and pay by cheque



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National Conference (Sheraton Hotel Room)

FPWR Canada has a discounted room rate available for conference guests at $159 per night. You may contact the Reservations Center at 1888 6277092 with the group name FPWR- National Conference or the group code FE06AA to make reservations or alternatively use the Stargroup website https://www.starwoodmeeting.com/Book/FE06AA

The cut-off for reserving rooms at the discounted rate is 5:00 EDT, Wednesday, April 12, 2017.

Sheraton Parking Procedures:

Please bring your parking ticket with you for validation.

Follow the signs directing you to Pearson International Airport’s Terminal 3 and the parking garage. Access the hotel via Levels P1, P2, (by elevator) and P5 (rooftop). We recommend P5 as it provides access directly into the lobby of the hotel.

PARKING CHARGES

Overnight guests will be charged $20.00, including applicable taxes per day, one car per registered guest. This includes in and out privileges to the garage.

For those people not staying overnight, the parking charge of $20.00 (including taxes) will apply when meeting guests, or attending a meeting or function at the Hotel.

PLEASE BRING YOUR PARKING TICKET WITH YOU INTO THE HOTEL FOR VALIDATION.

PARKING VALIDATION

Parking ticket validation is done at the Front Desk, prior to departure from the hotel. Charges will be known at the time of validation. It will either be posted to your account or collected directly from you, based on your contract.

If the company will cover the charges for parking (for guests attending meetings at the hotel) then our EMS will collect the parking tickets from the onsite contact and validate the tickets for the attendees. Tickets will be returned to the onsite contact. Guests could also validate their tickets at the Front Desk by informing the Front Desk agent that they are part of the group.

EXITING THE HOTEL

Simply insert your validated parking ticket in the parking machine to exit.

“It's BUZZ Worthy...”

Speakers & Time Subject to Change

Download the PDF brochure


Morning Sessions

8:15 - 9:00 a.m.

2017 Conference Registration

Location: Alpine Room (Lower Levels)
9:00 - 9:15am

Opening Remarks from Belinda Jones and Michelle Cordeiro

Co-Hosts, 2017 FPWR Canada National Medical Conference
9:15 - 10:30am

Dr. Teresa Strong Ph.D., Professor of Medicine, University of Alabama at Birmingham; and Chair, Scientific Advisory Board, FPWR

Clinical Trials and 5 Year Research Plan & Global Registry
Theresa will provide a review of the initiatives funded by FPWR. This will include an overview of newly funded studies, outcomes from previously funded projects as well as new opportunities and advances in PWS research. She will share exciting news about PWS clinical trials and the 5 Year Research Plan and what we need to do to move research forward!
10:30 - 11:15am

Karen Balko, RD BaSc and Dr. Sanjukta (San) Basak MSc, MDCM, FRCPC Approach to Healthy Nutrition in PWS

Karen Balko, RD and Dr. Sanjukta Basak will provide an evidence based review of the nutrition approaches for management of PWS. The talk will focus on best nutrition practice as well provide a review detailing the current literature and use of nutritional supplements in PWS.
11:15 - 11:30am BREAK
11:30 - 11:45am

Dr. Jill Hamilton, MD

Growth Hormone Submission to ODP (Part 1)
11:45 - 12:00pm

Holly Sine

Volunteer GH Working Group Growth Hormone Submission to ODP (Part 2)
12:00 - 12:15pm

Cathy Mallove

Chair, Ontario Prader-Willi Syndrome Association Working Group OPWSA Residential Options Working Group
12:15 - 12:30pm

Holly Sine, Co-Chair OPWSA & Jennifer Coens, Executive Director

Update from Ontario Prader-Willi Syndrome Association
12:30 - 1:15pm

Lunch

Afternoon Sessions

1:15 - 1:45pm

Carole Elkhal – Community Director

One Small Step Presentation
1:45 - 2:15pm

Ron Malis, B.A, B.Ed, M.B.A. Financial Advisor

Planning for the Future, Financial Solutions for People with Disabilities and their Families – Wills, RDSP, Estate Planning
2:15 - 3:15pm

Patrice Carroll, Manager of PWS Services, Latham Center

Lee Chamberlain, Vice President for Operations, Latham Center Executive Dysfunction/Oppositional Defiant Disorders/Positive Behaviour Support

Patrice Carroll has been working with people with Prader-Willi Syndrome since 2000. Patrice is on the PWSAUSA Professional Providers Advisory Board and consults to providers and families nation-wide on working with people with PWS. We see common traits and behaviors in many of our kids with PWS and many of these are caused by an Executive Dysfunction Disorder. Executive processes allow us to create and carry through with goals, to self-monitor and regulate our emotions, to plan, and to inhibit our responses (think before acting). People with PWS have a deficiency in these areas.
3:15 - 4:00pm

Break and Networking

Break off into groups, selected topics will in Recreational Respite (Patrina from Recreational Respite), One Small Step (Carole E.), Diet & Nutrition (Karen Balko) and Behaviour Support (Patrice and Lee)
4:00 - 4:30pm

James Noronha, Manager, Program Services, Special Olympics

An introduction to the Special Olympics movement its mission and program and how it can benefit families, support friendship and allow our athletes to experience the joy of sport. The presentation will cover the history of the movement, research, the integration of health and wellness and future development and opportunities. There will be an opportunity to answer questions you may have about this important resource.
4:30 - 5:00pm

Jack Jones, FPWR Canada Vice-President

Create YOUR Buzz!
Get involved! A talk about how you can create a buzz and spread the word to further research.
5:00 - 5:30pm

Wrap-Up – Belinda Jones and Michelle Cordeiro

For the entire PWS Community including:

  • Families
  • Behavioural Therapists
  • Medical Professionals
  • Educators
  • Community Agencies
  • PWS Researchers
  • Scientific Experts

Registration Form

To complete registration, you can pay online using the form below or register by mail and pay by cheque

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