Foundation for Prader Willi Research Canada
fpwr.org
Français
DONATE NOW
  •  
  •  
    • Diagnosis & Treatments
    • My Child just got Diagnosed...
    • New Parents
  •  
    • Board of Directors
    • International Affiliates
  •  
    • 5 Year Research Plan
    • Research Blog
    • Current Projects
    • Research Outcomes
    • Clinical Trials
    • Grant Application
  •  
    • Get Involved
    • Volunteer - Make a Difference
  •  
    • News
    • Events
    • In Memoriam
    • In Honour
    • Newsletters
    • Educational Advocacy
    • Let's Share!
  •  
    • Photo Gallery
    • Videos
    • Stories of Hope
  •  
  •  
 

News & Events

  • News
  • Events
    • 10th & Farewell Live Life FULL Guelph Gala
    • Live Life FULL Toronto Gala
    • One Small Step Walkathon
    • National Family Conference
    • Other Events
  • In Memoriam
  • In Honour
 
 
 

5 Weeks, 5 Months and over $5000 for Prader-Willi Syndrome in Quebec, Canada

Posted by Keegan JohnsonMay 4, 2010 at 10:59amNo Comments

Rachel (5 months, PWS) from Quebec At 5 months old Rachel Howard was diagnosed with Prader-Willi Syndrome.  5 weeks later her parents Stacey and Eric Howard had raised over $5,000 for research into Prader-Willi Syndrome.  Watch out world here comes Rachel.

Dealing with a new diagnosis can be overwhelming and it takes some time for families to adjust.  As far as we can tell the Howards skipped that step.  Living just outside of Montreal, Quebec, Canada the Howards chose to deal with their diagnosis, by joining the One SMALL Step Walkathon and raising money … 5 weeks later their friends and family had contributed over $5,000 and the thermometer keeps rising.

“Stacey and Eric are an inspiration for all of us,” said Tanya Johnson, co-founder of FPWR Canada.  ” They have taken what could have been devastating news and turned into into something positive.  The money they are raising for research will be used to help eliminate the challenges of Prader-Willi Syndrome.”

Share |

Leave a Reply

(will not be published)

 
© Copyright 2021. Foundation For Prader-Willi Canada. All rights reserved. Registered Charity # 855717385RR0001 | Designed By Karmatize
About PWS | About FPWRC | Research | Get Involved | News & Events | Media Gallery | Donate | Contact | Privacy Policy