FPWR Canada 2018 Spring Newsletter

Clinical trial in Canada GLWL Research is now recruiting patients for its Phase 2 study to evaluate the efficacy, safety and pharmacokinetics of GLWL-01 in the treatment of patients with Prader-Willi syndrome. The study will compare the effects of GLWL-01 on hyperphagia as compared to a placebo. You can learn more about GLWL-01 click on […]

Clinical trial in Canada


GLWL Research is now recruiting patients for its Phase 2 study to evaluate the efficacy, safety and pharmacokinetics of GLWL-01 in the treatment of patients with Prader-Willi syndrome. The study will compare the effects of GLWL-01 on hyperphagia as compared to a placebo. You can learn more about GLWL-01 click on button below!

Click here!


Sign-up to participate to a walk!

  • Brampton, ON
  • Grande Prairie, AB
  • Happy Valley-Goose Bay, NL
  • Ottawa, ON
  • Calgary, AB
  • Kingston, ON
  • Sudbury, ON
  • Stonewall, MB
  • Quebec, QC
  • Hamstead, QC
  • Richmond Hill, ON
  • Winnipeg, MB
  • North Vancouver, BC
  • McMaster University, ON

For more information on dates and locations for each walk go to fundraise.fpwr.ca

You can also link to the OSS website from fpwr.ca. Click on one of the following hyperlinks:

  • The OSS logo
  • The scrolling pictures
  • The OSS ticker

See picture below for details:

Click on image to watch a YouTube video that shows you how to:

  • Find an event
  • Open a fundraising page under an event

We need your help!

OUR One SMALL Step GOAL in 2018 is to raise $280,000 for PWS research.

Help us help our kids and loved ones with PWS. Contact us today.

If you would like to host a One SMALL Step event in your community, please contact carole.elkhal@fpwr.ca

Thank you!


OSS Inspirational Story-Jack and Belinda Jones

Jack and Belinda Jones are hosting their OSS in Brampton, Ontario on May 27.
Click on the picture below to read what inspires them to host a walk for PWS research every year.


Welcome McMaster Chapter – FPWR Canada

Jack Jones, President, FPWR Canada is pleased to extend a special welcome and congratulations to FPWR Canada’s inaugural university chapter – the McMaster Chapter – FPWR Canada.

The application and background work to initiate this Chapter was completed by Nickrooz Grami, Health Sciences student, McMaster University. In past years Mr. Grami had participated in the One SMALL Step event, and, from his contact with PWS families developed a keen desire to support the fundraising and education efforts of FPWR Canada in alleviating the challenge of Prader-Willi Syndrome (PWS). It is through his dedication and commitment the first FPWR Canada university-based chapter was approved.

Thank you Nickrooz Grami and the McMaster Chapter for your support!

The Chapter has planned its first official One SMALL Step event mid-May 2018 at McMaster Campus. Watch for additional details.


Upcoming events

To purchase golf tournament tickets visit:

http://www.fpwr.ca/news-events/events/fpwrc-golf-tournament/

Please visit http://www.fpwr.ca/news-events/guelph-gala/ to purchase tickets

For more information about the gala please contact guelphgala@gmail.com


Check out the updates to our website


Find out the latest news on:

  • Research
  • Events
  • Important updates

 


Second Annual Owen’s PWS – Hungry For A Cure Dart Tournament on Saturday, May 26

Irene O’Donnell-Russell and Amber White are hosing the2nd annual Owen’s PWS – Hungry For A Cure Dart Tournament on Saturday, May 26. Once again it will be singles and doubles at $10.00 each. Breakfast will be included for the folks playing singles and lunch for those playing doubles. Sign up and pay in advance for a chance to win an LCBO gift card. Sign up between 9 and 9:30 – games to start at 9:45 for singles. Sign up for doubles 11:30 play at noon. Please contact Irene at….email address here for more information.

Dance it up for Owen’s PWS Fundraiser on Saturday, June 9

Amber White and her family are hosting a dance on Saturday, June 9.
Tickets are 1 for $15 or 2 for $25, the event will include games, raffles, toonie toss, food and of course dancing. Amber and he family have raised $20,000 the past four years. They are HUNGRY for a cure for somebody they love. Please join them again this year as they dance the night away.

Second Annual Drive, Chip and Putt for PWS on Saturday, September 8

Brooke Gibson and her team are preparing the Second Annual Charity Golf Tournament for The Foundation for Prader-Willi Syndrome Research (FPWR) Canada. The event will be held on Saturday, September 8 at Lakeside Greens, Chestermere, Alberta. This will be another amazing event filled with golf, food, friends and fun. Whether you’re an avid golfer or just want to help a great cause and have fun in the process this event is for you. Watch for more details to come over the next few weeks…..but mark your calendars and tell your friends!

If you are interested in hosting a special event and fundraising for FPWR Canada please contact Michelle Cordeiro at michelle.cordeiro@fpwr.ca
Stay connected and check for updated information on www.fpwr.ca

Topics: Announcements

FPWR Canada

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