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Message from Jack Jones, FPWR Canada President

At this time a decision has been made to postpone the Family Conference.

The COVID-19 outbreak is affecting us all and is escalating rapidly. I am aware of several large scale closures of business offices and cancellations of several types and scales of gatherings. These are expected to increase in the coming weeks.

With the current trajectory of the disease being unknown, and with registration for the conference likely taking place during a time of heightened impact/fear level in Canada, from a risk perspective I think it makes the most sense to postpone the conference to a later date.

We will inform the PWS community once a new date has been set.

For those that have registered, please know we will honour your registration for the new date or if you would prefer a refund, please contact Operations Director, Michelle Cordeiro at michelle.cordeiro@fpwr.ca.

We apologize for any inconvenience and hope you realize that this decision was made in everyone’s best interest.

Sincerely,

Jack Jones

All PWS Parents, Medical Doctors/Professionals/Therapists/Teachers are welcome to attend!

All PWS Parents, Medical Doctors/Professionals/Therapists/Teachers are welcome to attend! We want to invite you to attend our PWS Family National Conference– “Whatever It Takes”. As parents, we know we will do whatever it takes for our children. We will help them overcome every challenge, and we will celebrate their every success as if they are our own. FPWR Canada is very excited about this year’s conference – “Whatever It Takes”. We want to invite you to attend our PWS Family National Conference– “Whatever It Takes”. As parents, we know we will do whatever it takes for our children. We will help them overcome every challenge, and we will celebrate their every success as if they are our own.

We have made so much progress in the last 11 years and we want to share it all with you. Millions of dollars raised and spent on research around the world and Theresa Strong will tell us all about it! Canadians will do “Whatever It Takes” from coast to coast and changing the landscape of PWS. But the most valuable part of attending this conference will be connecting with other parents, sharing what you’ve learned and learning something new that you can take home and try immediately! Our PWS community is full of doers, hard-workers and incredible families who continue to fight and search for answers. Be surrounded by them, talk to the experts yourself and get ready to have some fun! This conference would not be possible without our Conference committee made up of parents. Feel free to reach out to any one of them if you have questions about the conference:

Chair Michelle Cordeiro
Committee Members Tanya Johnson, Silvia Rinaldi, Laura Birnie, Jenn Joseph, Susan Sims, Belinda Jones, Simina Ardeleanu, Carole Elkhal
Important Note

After careful consideration, we have decided not to offer a day program for individuals with PWS. The People with PWS program has been offered in the past however, we are focusing our energy on other aspects of planning this year. We sincerely hope that every person interested in attending the conference has the opportunity to do so because it is going to be an exciting event filled with parent-bonding and learning (sometimes we need the break too ;). It is a great time to use respite or your support worker to give you the opportunity to learn new strategies and get energized. If you would like to be connected to other families requiring care during conference hours please let us know as we would be happy to assist you. If your child with PWS is under the age of 2, feel free to bring them to each session under your direct supervision.

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