National Research Conference 2009

FPWR Canada Conference Informs and Inspires PWS Families to Choose to Believe…

National Research ConferenceThanks to those who attended our 1st Annual Medical Research Conference on May 9th, 2009 at the Ontario Science. If you were unable to attend our conference, click on 2009 Conference Summary to read and hear about everything you missed. Understand why Canadian families are “choosing to believe…” This package includes:

  • Highlights video and summary of all speakers (Theresa Strong, Jennifer Miller, Rachel Wevrick, Dr. Berall and Keegan Johnson)…Find out how our medical professionals team up to change medical protocol for individuals with PWS. The outcome of critical PWS research may have saved your child’s life! Ask your endocrinologist about adrenal insufficiency testing
  • Pictures of families/doctors/researchers/ individuals with PWS who attended our weekend of hope
  • Inspirational phrases/posters of our precious loved ones with PWS (contact Tanya Johnson ( to find out how you can get a poster of your own child free of charge)
  • You can also check out our videos on our website video gallery and on YouTube

National Research ConferenceFPWR Canada has full coverage of all speakers available on DVD, to receive a copy of this valuable information (along with our GH FAQ package), please email Susan James at If you have a child with PWS and you are one of the first 100 families to send us your complete contact information, you will receive these resources for FREE! If you are a medical professional or individual who is interested in learning more about PWS research, you can purchase a DVD for only $15

Save the date: 2nd Annual FPWR Canada’s National Medical Research Conference May 15-16th, 2010 at the Ontario Science Centre in Toronto.

“Your conference may have saved lives today,” says Karen Balko, dietician at NYGH.

For a More Information: Download the 2009 Conference Summary

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