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Past Newsletters


Fat Free

Just because a package says low fat or fat free…read it closely…watch for high sodium and sugar grams.

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Prader Willi Syndrome, Extreme Makeover, The Starkweathers and Making Miracles Happen

Tonight everything changed for the Prader-Willi Syndrome community.  With only 1 in 15,000 people affected by Prader-Willi Syndrome the community is small and often very spread out.  On top of that Prader Willi Syndrome is so complex it has been difficult for researchers to make any significant progress.  Finally, with our children getting older, time […]

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Rachel (5 months, PWS) from Quebec

5 Weeks, 5 Months and over $5000 for Prader-Willi Syndrome in Quebec, Canada

At 5 months old Rachel Howard was diagnosed with Prader-Willi Syndrome.  5 weeks later her parents Stacey and Eric Howard had raised over $5,000 for research into Prader-Willi Syndrome.  Watch out world here comes Rachel. Dealing with a new diagnosis can be overwhelming and it takes some time for families to adjust.  As far as […]

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FPWR Canada Announces National Conference on May 15/16 for Prader-Willi Syndrome in Toronto, Ontario

“Your conference may have saved lives today,” – Karen Balko You will not want to miss these 2 days of learning and sharing of Prader-Willi Syndrome best practices.  For only $75 you can attend our 2 day National Conference on May 15th and 16th.  You will hear from Prader-Willi Syndrome researchers including Dr. Haqq, Dr. […]

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Gala for Prader Willi Syndrome, Vaughn, Ontario

FPWR Canada annouces Gala on May 14 for Prader-Willi Syndrome in Vaughan, Ontario

Tickets are selling fast!  Buy your tickets on-line http://www.fpwr.ca/news-events/events/one-small-step-gala/ (or call Michelle Cordeiro, 1-866-99-FPWRC x252)  today!  FPWR Canada is hosting our  fourth annual One Small Step Gala on Friday, May 14 at Terrace Banquet Centre in Vaughan, Ontario.  Enjoy a delicious meal, open delux, live DJ and silent/live auction for only $110.  Buy a ticket for […]

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In Memory of Larry Kelly, Guelph Ontario

Larry Kelly of Guelph, beloved Grandfather of Clare Kelly passed away on December 22, 2009.  At the age of 69.  Larry was a strong advocate for his granddaughter Clare Kelly. Clare was diagnosed with Prader Willi Syndrome back in June 2007.  Despite Larry’s declining health over the past few years, he always took the time […]

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Genevieve Joins FPWR Canada as Alberta Representative

We are thrilled to have Genevieve Currie join FPWR Canada as our Alberta representative.  You can read about Genevieve and what is going on in the Prader Willi community in Alberta Thanks Genevieve!  We can feel the momentum building across Canada.

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Uggs/Tiffany Fundraiser for Prader-Willi Syndrome in Ontario

Michelle Cordeiro held an Uggs/Tiffany fundraiser at her local church hall on Saturday, February 20. It was a great success. From the generous purchases of over 100 people that attended, she raised $1,500 for Prader-Willi Research. “It was a lot of fun and an easy way to raise money for FPWR Canada. What more could […]

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New www.fpwr.ca site live

We’re live! Thanks for visiting our new website www.fpwr.ca.  Our new site will allow us to bring you the latest PWS research information, raise money and help connect families across Canada.  Take a look and see if you can find your picture on the site.  If you would like us to add your picture and […]

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Foundation for Prader-Willi Research Canada Medical Conference

FPWR Canada Conference Informs and Inspires PWS Families to Choose to Believe…

Thanks to those who attended our 1st Annual Medical Research Conference on May 9th, 2009 at the Ontario Science. If you were unable to attend our conference, click on 2009 Conference Summary to read and hear about everything you missed. Understand why Canadian families are “choosing to believe…” This package includes: Highlights video and summary […]

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