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FPWR News

In Memory of Larry Kelly, Guelph Ontario

Larry Kelly of Guelph, beloved Grandfather of Clare Kelly passed away on December 22, 2009.  At the age of 69.  Larry was a strong advocate for his granddaughter Clare Kelly. Clare was diagnosed with Prader Willi Syndrome back in June 2007.  Despite Larry’s declining health over the past few years, he always took the time […]

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Genevieve Joins FPWR Canada as Alberta Representative

We are thrilled to have Genevieve Currie join FPWR Canada as our Alberta representative.  You can read about Genevieve and what is going on in the Prader Willi community in Alberta Thanks Genevieve!  We can feel the momentum building across Canada.

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Uggs/Tiffany Fundraiser for Prader-Willi Syndrome in Ontario

Michelle Cordeiro held an Uggs/Tiffany fundraiser at her local church hall on Saturday, February 20. It was a great success. From the generous purchases of over 100 people that attended, she raised $1,500 for Prader-Willi Research. “It was a lot of fun and an easy way to raise money for FPWR Canada. What more could […]

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New www.fpwr.ca site live

We’re live! Thanks for visiting our new website www.fpwr.ca.  Our new site will allow us to bring you the latest PWS research information, raise money and help connect families across Canada.  Take a look and see if you can find your picture on the site.  If you would like us to add your picture and […]

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Foundation for Prader-Willi Research Canada Medical Conference

FPWR Canada Conference Informs and Inspires PWS Families to Choose to Believe…

Thanks to those who attended our 1st Annual Medical Research Conference on May 9th, 2009 at the Ontario Science. If you were unable to attend our conference, click on 2009 Conference Summary to read and hear about everything you missed. Understand why Canadian families are “choosing to believe…” This package includes: Highlights video and summary […]

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Record breaking attendance at our third annual One Small Step Gala!

In only our third year, we welcomed over 650 guests who helped us raise over $60,000 for Prader-Willi Syndrome (PWS) research. We were honoured to have representatives from across Canada and the US, including Joanne Taylor and Cheryl Gagne from BCPWSA and Dr. Theresa Strong and Alice Viroslav from the FPWR. Our increase of almost […]

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Jenna at the Walkathon

One SMALL Step Walk/Run 2009

FPWR Canada is hosting its 5th annual One SMALL Step Walk/Run on Sunday, August 16th, 2009. You can choose between 2km or 4km walk or challenge yourself with our 5km run.  Join 500 people at Centennial Park in Etobicoke, Ontario OR take a walk in your own neighbourhood in your own province.  We have expanded our event […]

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Progress Report

2008 was another exceptional year for FPWR Canada. Our annual gala and walkathon continue to be a huge success and we are now seeing increased fundraising from all over the country. All of this means we have additional funds to support research! We have funded two projects from Dr. Rachel Wevrick of the University of […]

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1 out of every 15,000 births

Has anyone told you that you were blessed with a child with Prader-Willi Syndrome for a reason?  What do you think? I do not profess to know if this is true or not, but what I do know is that we are lucky. We are lucky to have families from all over Canada (BC, Alberta, […]

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