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Past Newsletters


Record breaking attendance at our third annual One Small Step Gala!

In only our third year, we welcomed over 650 guests who helped us raise over $60,000 for Prader-Willi Syndrome (PWS) research. We were honoured to have representatives from across Canada and the US, including Joanne Taylor and Cheryl Gagne from BCPWSA and Dr. Theresa Strong and Alice Viroslav from the FPWR. Our increase of almost […]

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Jenna at the Walkathon

One SMALL Step Walk/Run 2009

FPWR Canada is hosting its 5th annual One SMALL Step Walk/Run on Sunday, August 16th, 2009. You can choose between 2km or 4km walk or challenge yourself with our 5km run.  Join 500 people at Centennial Park in Etobicoke, Ontario OR take a walk in your own neighbourhood in your own province.  We have expanded our event […]

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Progress Report

2008 was another exceptional year for FPWR Canada. Our annual gala and walkathon continue to be a huge success and we are now seeing increased fundraising from all over the country. All of this means we have additional funds to support research! We have funded two projects from Dr. Rachel Wevrick of the University of […]

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1 out of every 15,000 births

Has anyone told you that you were blessed with a child with Prader-Willi Syndrome for a reason?  What do you think? I do not profess to know if this is true or not, but what I do know is that we are lucky. We are lucky to have families from all over Canada (BC, Alberta, […]

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