Community Stories
PWS Families
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Personal Story by the Johnson Family
2021
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Personal Inspirational Story by the Joseph Family
2015
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Personal Inspirational Story by the Gibson Family
2015
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Personal Inspirational Story by the Jones Family
2014
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Personal Inspirational Story by the DelCane Family
2013
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Personal Inspirational Story by the Cordeiro Family
2012
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Personal Inspirational Story by the Livingston Family
2009
One Small Step Inspirational Stories
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OSS Inspirational Stories
Kristin Simms
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OSS Inspirational Stories
Jack and Belinda Jones
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OSS Inspirational Stories
Elaine and Neil Johnson
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OSS Inspirational Stories
Doug and Tammy Renwick
Share Your Journey. Inspire Others.
Every story matters. Whether you're a parent, sibling, caregiver, researcher, or friend—your experience with Prader-Willi Syndrome can offer hope, encouragement, and understanding to someone else.
By sharing your journey, you:
Help newly diagnosed families feel less alone
Celebrate milestones and small victories
Inspire others to get involved, donate, or advocate for change
Want to share your story?
We welcome written stories, photos, or videos. Fill out the form to submit — and thank you for being part of our community of hope.