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FPWR News

Raptors Raffle for PWS

FPWR Canada is excited to announce our very first Scotiabank Raptors Raffle for Prader-Willi Syndrome! 1 lucky winner and 5 friends will get to see Canada’s Basketball team – The Toronto Raptors play against Chicago Bulls on March 26, 2019 VIP STYLE! Prize package, generously donated by Scotiabank, includes: 6 Platinum seats with Chairman club […]

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Happy new year from Tanya Johnson!

New Years is a time for reflection and setting goals… I can’t believe it has been 14 years since receiving the diagnosis of Prader-Willi Syndrome. I know every family will never forget diagnosis day. For us, we were sitting at McMaster Hospital on my husband’s 30th birthday when we were given news that would change […]

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FPWR Canada Holiday Appeal 2018!

Thank you for your donation towards helping fulfill our wishes.

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2018 FPWR Fall Newsletter

Cooler weather? Warm up with FPWR Canada! One SMALL Step Signature Campaign 2018 Thank you for walking! Thank you for spreading awareness and raising funds for PWS! Brampton, ON Grande Prairie, AB McMaster University, ON Kingston, ON Happy Valley-Goose Bay, NL Winnipeg,MB Hampstead, QC North Vancouver,BC Quebec,QC Ottawa, ON Calgary, AB Toronto, ON Thank you […]

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Introducing Do It Yourself (DIY) Fundraising!

Whatever it has been – yard sale, birthday celebration, dance, dart tournament, hockey tournament, golf tournament…FPWR Canada appreciates all those that hosted special events to raise money to help our loved ones living with Prader-Willi Syndrome by supporting life changing research. Now there is an easier way to raise funds for PWS Research in your […]

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FPWR Canada 2018 Summer Newsletter

The weather is heating up and so is the work at FPWR Canada! Helping bring research forward Research and Canadian Clinical trials One SMALL Step Signature Campaign 2018 We are well on our way with our One SMALL Step signature events!   Already we have hosts that have completed their events:   Brampton, ON Grande […]

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A Tribute to Jacob Zavitz

Lessons For Living A Meaningful Life A Tribute To Jacob Zavitz We go through life trying to live and learn and do the best we can to make a meaningful contribution to society. And if you’re lucky, you meet amazing people along the way who inspire you and make you a better person. Jacob Zavitz […]

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In memory of Victoria Sprake

Victoria Sprake passed away peacefully at the Sarcee Hospice in Calgary on June 7, 2018. Born in Edmonton on August 13, 1947 to Garfield and Elsie Breyer, Vicki (as she preferred to be called) grew up with her older sisters, Darlene and Eva, in Fort Saskatchewan. She met her future husband, Ken, in 1965. They […]

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Get Involved – Clinical Trials and Studies Open to Canadian Families

Clinical trials and studies open to Canadian families For information about the importance of participation in clinical trials, visit https://research.fpwr.org/blog/pws-clinical-trials-2017-update-video   For up-to-date information on clinical trials and studies world-wide, visit https://www.fpwr.org/category/clinical-trials   Clinical Trials: participants are enrolled at a specific site. Clinic visits are required. Participants will be given the treatment or a placebo. […]

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Speech by Tanya Johnson, updates on research

Tanya Johnson (mother and FPWR Canada co-founder) gets emotional when speaking at our 10th Annual Golf Tournament about her son Dante, the challenges of PWS and exciting news in research.

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