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FPWR News

2018 Year-End Review

The following is the 2018 year end review: FPWR Canada Annual Review

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University of Ottawa Research Study

University of Ottawa Research Study. See attached link for consent form

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Top 5 Reasons To Attend Family Conference

#5 Meet the Experts Hear from leading experts in a variety of areas including sleep, endocrinology, psychology, advocacy in education, nutrition and more! Get the most up to date information on cutting-edge research happening in the PWS community and engage the researchers and experts themselves! #4 Connect to other Families Breakout sessions at our 2019 […]

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Raptors Raffle for PWS

FPWR Canada is excited to announce our very first Scotiabank Raptors Raffle for Prader-Willi Syndrome! 1 lucky winner and 5 friends will get to see Canada’s Basketball team – The Toronto Raptors play against Chicago Bulls on March 26, 2019 VIP STYLE! Prize package, generously donated by Scotiabank, includes: 6 Platinum seats with Chairman club […]

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Happy new year from Tanya Johnson!

New Years is a time for reflection and setting goals… I can’t believe it has been 14 years since receiving the diagnosis of Prader-Willi Syndrome. I know every family will never forget diagnosis day. For us, we were sitting at McMaster Hospital on my husband’s 30th birthday when we were given news that would change […]

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FPWR Canada Holiday Appeal 2018!

Thank you for your donation towards helping fulfill our wishes.

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2018 FPWR Fall Newsletter

Cooler weather? Warm up with FPWR Canada! One SMALL Step Signature Campaign 2018 Thank you for walking! Thank you for spreading awareness and raising funds for PWS! Brampton, ON Grande Prairie, AB McMaster University, ON Kingston, ON Happy Valley-Goose Bay, NL Winnipeg,MB Hampstead, QC North Vancouver,BC Quebec,QC Ottawa, ON Calgary, AB Toronto, ON Thank you […]

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Introducing Do It Yourself (DIY) Fundraising!

Whatever it has been – yard sale, birthday celebration, dance, dart tournament, hockey tournament, golf tournament…FPWR Canada appreciates all those that hosted special events to raise money to help our loved ones living with Prader-Willi Syndrome by supporting life changing research. Now there is an easier way to raise funds for PWS Research in your […]

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FPWR Canada 2018 Summer Newsletter

The weather is heating up and so is the work at FPWR Canada! Helping bring research forward Research and Canadian Clinical trials One SMALL Step Signature Campaign 2018 We are well on our way with our One SMALL Step signature events!   Already we have hosts that have completed their events:   Brampton, ON Grande […]

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A Tribute to Jacob Zavitz

Lessons For Living A Meaningful Life A Tribute To Jacob Zavitz We go through life trying to live and learn and do the best we can to make a meaningful contribution to society. And if you’re lucky, you meet amazing people along the way who inspire you and make you a better person. Jacob Zavitz […]

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