FPWR News

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Cooler weather? Warm up with FPWR Canada! One SMALL Step Signature Campaign 2018 Thank you for walking! Thank you for spreading awareness and raising funds for PWS! Brampton, ON Grande Prairie, AB McMaster University, ON Kingston, ON Happy Valley-Goose Bay, NL Winnipeg,MB Hampstead, QC North Vancouver,BC Quebec,QC Ottawa, ON Calgary, AB Toronto, ON Thank you […]

Whatever it has been – yard sale, birthday celebration, dance, dart tournament, hockey tournament, golf tournament…FPWR Canada appreciates all those that hosted special events to raise money to help our loved ones living with Prader-Willi Syndrome by supporting life changing research. Now there is an easier way to raise funds for PWS Research in your […]

The weather is heating up and so is the work at FPWR Canada! Helping bring research forward Research and Canadian Clinical trials One SMALL Step Signature Campaign 2018 We are well on our way with our One SMALL Step signature events!   Already we have hosts that have completed their events:   Brampton, ON Grande […]

Lessons For Living A Meaningful Life A Tribute To Jacob Zavitz We go through life trying to live and learn and do the best we can to make a meaningful contribution to society. And if you’re lucky, you meet amazing people along the way who inspire you and make you a better person. Jacob Zavitz […]

Victoria Sprake passed away peacefully at the Sarcee Hospice in Calgary on June 7, 2018. Born in Edmonton on August 13, 1947 to Garfield and Elsie Breyer, Vicki (as she preferred to be called) grew up with her older sisters, Darlene and Eva, in Fort Saskatchewan. She met her future husband, Ken, in 1965. They […]

Clinical trials and studies open to Canadian families For information about the importance of participation in clinical trials, visit https://research.fpwr.org/blog/pws-clinical-trials-2017-update-video   For up-to-date information on clinical trials and studies world-wide, visit https://www.fpwr.org/category/clinical-trials   Clinical Trials: participants are enrolled at a specific site. Clinic visits are required. Participants will be given the treatment or a placebo. […]

Tanya Johnson (mother and FPWR Canada co-founder) gets emotional when speaking at our 10th Annual Golf Tournament about her son Dante, the challenges of PWS and exciting news in research.

Clinical trial in Canada GLWL Research is now recruiting patients for its Phase 2 study to evaluate the efficacy, safety and pharmacokinetics of GLWL-01 in the treatment of patients with Prader-Willi syndrome. The study will compare the effects of GLWL-01 on hyperphagia as compared to a placebo. You can learn more about GLWL-01 click on […]

FPWR Canada 2017 Year-End Review