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1 out of every 15,000 births

Posted by Keegan JohnsonJanuary 24, 2010 at 6:21pmNo Comments

Has anyone told you that you were blessed with a child with Prader-Willi Syndrome for a reason?  What do you think? I do not profess to know if this is true or not, but what I do know is that we are lucky.

  • We are lucky to have families from all over Canada (BC, Alberta, Ontario, Quebec) joining together to make a difference.
  • We are lucky to have friends like 6 year old Abbey Henry who raised $1000 for PWS research.
  • We are lucky to have Doctors and leading researchers like Dr. Berall, Dr. Wevrick, Dr. Strong and Dr. Miller dedicating their professional lives to helping our children.

Overall, we are lucky because we are in a position to work together to help our children… which is what it is all about. I know we are lucky and the question I have is… are you ready?

If you are interested in getting involved and helping eliminate the challenges of PWS, please VOLUNTEER.

Keegan Johnson,

President and Chairman, FPWR Canada

Tags: Hope

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