Foundation for Prader-Willi Research (U.S.)

The Foundation for Prader-Willi Research (FPWR) was established in 2003 by parents of children with Prader-Willi syndrome (PWS).  Today, FPWR is composed of parents, family members, researchers, and others who are interested in addressing the many issues related to PWS, including childhood obesity and autism spectrum disorders.

For more information, please visit www.fpwr.org.


International Prader-Willi Syndrome Organization (IPWSO)

IPWSO’s mission is to raise the quality of life for all people with Prader-Willi Syndrome and their families. Financed by subscriptions from member associations, by donations, and grants, IPWSO is a non-profit organization, run by volunteers, with one part time paid Director of Program Development and one part-time Business and Technology Advisor.

For more information, please visit: www.ipwso.org

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Ontario Prader-Willi Syndrom Association (OPWSA)

OPWSA is a community of families, caregivers, medical researchers, and educators who live with and support those with Prader-Willi Syndrome.  

For more information, please visit www.opwsa.com


Canadian Organization for Rare Disorders (CORD)

CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada

 For more information, please visit www.raredisorders.ca



Prader‐Willi Syndrome Association, USA was formed in 1975 to unite parents, professionals, and other interested citizens to enhance the quality of life of those affected by Prader‐Willi syndrome. PWSA | USA empowers the PWS community through shared experiences, research, education, advocacy, and support.

For more information, please visit www.pwsausa.org


Latham Center

Since 1970, Lathem Center as been working together with their students, residents, their families, and outstanding professionals to bring hope and change to young people and adults who face difficult challenges.

For more information, please visit Latham Centers