Français FPWR Canada receives $1M Commitment to Support Prader-Willi Research
May 27, 2016 – Toronto, Ontario: FPWR Canada, a registered charity dedicated to supporting research to advance the understanding and treatment of Prader-Willi syndrome, announced it is the grateful recipient of a $1M commitment over the next 10 years to PWS Research. This is the largest donation commitment received in the history of the organization.
The announcement of this most generous gift, from an anonymous donor, was completed at the May 13, 2016 Toronto Gala, hosted by Michelle and Manny Cordeiro, co-founders of FPWR Canada and Co-Chairs of the Gala. The announcement also coincides with Prader-Willi Syndrome Awareness month.
“This $1M commitment over the next 10 years will support FPWR Canada in its goal to commission research into the cause, cure and control of Prader-Willi Syndrome. We wish to express our heartfelt thanks and gratitude to the donor who wishes to remain anonymous, but will truly have an impact on research initiatives. We want you to know that your commitment of $1M will help our children live life FULL. As a family we believe, “we must let go of the life we planned, so as to accept the one that is waiting for us.” Thank you for helping us on that journey.” – Michelle and Manny Cordeiro
Prader-Willi Syndrome (PWS) is a rare, genetic disorder affecting approximately 1 in 15,000 people. Nearly every system in the body is impacted by a PWS diagnosis but the most predominant symptom is extreme hunger. A person with PWS never feels full. There are currently no effective treatments to regulate appetite in PWS. Additional associated problems include growth hormone deficiency, behavioral challenges, intellectual disability, anxiety, sleep disturbances, and scoliosis.
FPWR Canada has thousands of parents, family members, researchers, and others who are interested in addressing the many issues related to PWS. Childhood obesity, developmental delays, psychiatric disorders, and autism spectrum disorders are issues related to PWS.
The mission of FPWR Canada is to eliminate the challenges of Prader-Willi Syndrome through the advancement of research. FPWR Canada supports cutting edge research around the world to advance the understanding of PWS.