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5 Year Research Plan

The Foundation for Prader-Willi Research (FPWR), with the input of community stakeholders, has developed a strategic research plan for Prader-Willi syndrome (PWS) to accelerate the research
and development of therapies for PWS.

Through the implementation of new translational research programs, the management of a world-class grants program, and the development of PWS research tools, FPWR will advance research in order to develop new treatments for PWS and improve the health and well being of those with PWS.

With the support of the PWS community, FPWR’s research program has grown from funding small pilot studies to encompassing a robust and diverse research portfolio that facilitates and guides the PWS research agenda. We have played an instrumental role in advancing the field of PWS research by supporting innovative research, encouraging collaboration, engaging pharmaceutical companies, and enabling a research-ready community.

Over the next 5 years, FPWR will take an increasingly directed approach to accelerate the development of new therapies for PWS and make sure we have treatments for our loved ones as soon as possible. FPWR will add to its current worldclass grant program an active translational research program aimed at streamlining the therapeutic development path. The grant program will continue to fund highly innovative, early stage studies, while the translational research program will focus on efficiently transforming the most promising approaches into new therapies.

Shorter-term goals of evaluating existing approaches to improve health and quality of life will be balanced with support of longer-term, potentially transformative therapeutic
development.